Category: Life

It has been more than nine months since I wrote anything on my blog. I have not written, because I have not needed to see my Oncologist since last April 2016.

Now that I have, I thought I would update everyone who may be interested with my results.

WBC 8.7, HGB 13.7, PLT 103, ALC 0.78.

As I walked in to the cancer wing of the hospital, like usual I did not want to be there. I knew that I felt healthy, I believed that all my blood counts were fine, but the thought of having to be there, I hated.

My blood pressure was taken, and was 181/78, when I got home, later that day, and checked it again, It was 133/68. It is always high when I go there.

Anyway to the facts of my blood readings, all blood counts normal, or near normal. My doctor said, that “you have defied the statistics.” I tell you that quote from my doctor, because I have come to realize that it is not possible for others to believe fully, understand completely, nor realize totally what has actually happened.

I have gone from a diagnosis of aggressive cancer to no measurable cancer in my blood, lymph nodes, and body. From pain in my bones, bloody nose, night sweats, and more, to none of these things now. I have gone from an enlarged spleen to normal, elevated cancer count in my blood, and bones, to no measurable amounts.

Yet some just can’t believe it. But if this helps, one thing is for sure, no man, no medical procedure, no man-made product has been involved in this statistical turn around. Even I sit in amazement; “How can this be.” So I have come to understand why it is hard for some to accept.

But the facts are present, I have no measurable cancer in my blood or body. That which has defied the statistics, has happened.

Please do not misunderstand this to mean I do not believe in medical procedures, man-made medicines, nor doctors. Just the opposite, God made man with the ability to extract what is needed from His creation. Brilliant and gifted people make medicines and invent procedures that lead to better cures, and longer life. I thank my doctors, and nurses who have calmed my nerves, and cared about me.

I tell you what has happened to me, not to diminish the achievements of those in the medical field. I tell you, to praise my Father in heaven, and thank my Lord and Savior Jesus Christ.

When Christ said, while nailed to that cross, “It is finished.” That is exactly what He meant. He took all of my and your sins upon Himself, and paid for what we could not pay. He paid, in the righteous, perfect, and holy court of God, all that was required from us. And took the punishment that was meant for you and me.  Jesus Christ, fulfilled the Holy, Perfect Law of God. And God, the Creator of the universe, accepted His payment. So we can say without hesitation, that the Grace of God, fulfilled the Law of God, all in Jesus Christ.

Is it hard for you to believe this too? If you confess with your the mouth, the Lord Jesus,  and believe in your heart that God raised him from the dead, you will be saved. Rom. 10:9

It is my Lord and Savior Christ Jesus, that has made the impossible, possible.

Merry Christmas to all.


Be therefore imitators of God, as beloved children.

Walk in love, even as Christ also loved you, and gave himself up for us………..

Ephesians 5:1-2a

In Genesis, we read that the Lord God told Adam, “because you have listened to your wife’s voice and ate from the tree about which I commanded you, Do not eat from it: the ground is cursed because of you. You will eat from it by means of painful labor all the days of your life. It will produce thorns for you, and you will eat the plants of the field. You will eat bread by the sweat of your brow until you return to the ground, since you were taken from it. For you are dust, and you will return to dust.”

Now many will say, after reading this passage, God is mean, unjust, and just cruel. If He is so nice, you would think He would have told Adam, this is only your first mistake, I will give you another chance.

But God is just, and if you are just, you have to do the right and just thing, the law demands it. If you did not, then you are not just.

The Lord God, who created Adam told Adam up front, before hand, “You are free to eat from any tree of the garden, but you must not eat from the tree of the knowledge of good and evil. For on the day you eat from it, you shall certainly die.” What did the Lord God actually say to Adam, “All these trees, here in the garden, you can freely eat from; all of them. But there is one that will cause you to die, don’t eat from that tree. I have given you life, but this fruit, that offers the knowledge of good and evil (Law), causes death.”

Before Adam gained the knowledge of the law. In God’s holiness, God only had to share His grace with Adam, not His justice. Paul clearly gives us the reason the Lord God told Adam not to eat from that tree. The law produces wrath. And where there is no law, there is no transgression. Romans 4:15

What we also neglect to read, and understand, is the Lord God firstly told the serpent (Satan), “Because you have done this, you are cursed more than any livestock and more than any wild animal. You will move on your belly and eat dust all the days of your life. I will put hostility(enmity) between you and the woman, and between your seed and her seed. (just a note: the woman does not have seed, the man does. The Lord God was letting us know right from the beginning that a miraculous (virgin) birth would occur). He will strike your head, and you will strike his heel. ”God was telling Satan that a man, born of a woman, will someday deliver a mortal blow to Satan. In this same verse, the Lord God is telling everyone, that Yeshua the Messiah (the Christ), Jesus Christ, will someday come and defeat Satan, along with the sin that Adam just committed, and death because of the knowledge of good and evil. In Christ, the Lord God would once again, in grace, meet, walk, and talk with His creation

I have been a Christian now for 38 years. I put my faith in Jesus Christ when I was 34 years old. Over these last 38 years, I have heard a certain theme about God. He is mean, demanding, unjust, angry, kills people, often good people, and even lets children starve. Many who think this, who believe this, I have found never studied, much less read, the only Book that actually reveals who God is.

There are some who claim they have read the Bible, but also say it was for the purpose of finding errors in it. And there are others who have started out with that same purpose, and have come to believe the Bible is the perfect, inerrant Word of God. There are others who believe, but do not read the Bible. Often I have found that it is because they are just not readers. However they believe and are often eager to hear and know more about the Bible. Then there are others who were told about the wonderful love that God has for them. And because of His love, He sent his Son, to pay for the sin Adam did, and all the sins they have done. They believed what they heard, and then began reading about it, in the Bible.

Of course there our also those that I have met, that do not believe there is such a thing as sin, or say they have never sinned. To these people I only remind them of what the Apostle John wrote. If we say that we have no sin, we deceive ourselves, and the truth is not in us. 1John 1:8. With that said, I cannot stop there, but must tell you the next thing John said. If we confess our sins, he is faithful and just to forgive us our sins, and to cleanse us from all unrighteousness. 1John 1:9

One does not have to read the Bible to be saved, it is Jesus Christ who saves. Yet by reading about this love that God shows to His creation, in Christ; gives the believing reader the opportunity, and ability to grow in that faith.

If one reads the Bible, one would find out that it is the devil that had the power of death. Since then the children have shared in flesh and blood, he also himself (Christ) in like manner partook of the same, that through death he might bring to nothing him who had the power of death, that is the devil. And might deliver all of them who through fear of death were all their lifetime subject to bondage. Hebrews 2:14-15.

It is Satan that hates what the Lord God created and has always wanted the human race dead. It is Adams original sin that caused a curse on the earth. It is because of that sin, we see disease, sickness, hate, and everything that lends itself to the destruction of human life. The good news is, Christ took the power of death from the devil, and offers life, health, and His love to all.

Now as for God being mean, demanding, unjust, angry, kills people, often good people, and even lets children starve. To those accusations, I say the law is demanding, we are unjust, and usually angry. People kill people, and it is people who cause children to starve.

God causes the crops to grow every year in most places around the world. The world grows more food for every man, woman, and child than we can eat. The world produces enough food to feed everyone. ( The principle problem is that many people in the world still do not have sufficient income to purchase (or land to grow) enough food.(

Yet, the United States alone sends thousands and thousands of tons of free food to starving nations every year, yet the children continue starve. Those who receive and hand out that food though, seem never to starve. The leaders of those poor starving countries, never look like they are starving. Why is that? Have you ever asked yourself that question.

Let me finish with this; why do so many hate God and will not read the Bible? Well the Bible gives us the answer. For when they knew God, they neither glorified Him as God, nor were thankful, but became vain in there imaginations, and their foolish heart was darkened. Professing themselves to be wise, they became fools, and changed the glory of the incorruptible God into an image made like corruptible man, and to birds and four footed beasts and creeping things. Romans 1

This same Bible tells us also how much God loves us, and His whole creation. For God so loved the world that He gave His only begotten Son, that whosoever believes in Him shall not perish, but have everlasting life. John 3:16




For I would not brethren, have you ignorant of my affliction which came to me by way of cancer. That I was pressed out of measure, beyond strength, insomuch that I despaired even of life. But I had the sentence of death on myself, that I should not trust in myself, but in God which raiseth the dead. Who delivered me from so great a death, and continues to deliver:

Paul writes these words in First Corinthians 1:8-10a. The only difference being, where I said I, he says us, and cancer in place of Asia.

December 25, 2010, I was told that I had stage 4 cancer and  I was devastated. Later I was told, you have stage 4  lymphoma cancer and leukemia (SLL/CLL). Like most, I tried to keep most of my fears inside, not wanting the world to know my apprehensions. Plus I was told that the kind of cancer I had, would take a long time to attrition. I was even told that probably something else would kill me before my cancer did. Yet at that time, the thought of my life here in this body, coming to and end, troubled me greatly.

As I became more knowledgeable about the cancer I had, I began to realize that not everything my doctors were telling me were complete. The more I found out, the more I realized that my death, may be sooner than later.

It was certainly true that many with the cancer I have, live long lives. As much as twenty-five years and ever more after diagnosis. But I found, that within my type of cancer, there are many factors that determine life expectancy. Also after being told that it would be many years before anything would be needed to be done. I was told just after eight months from diagnosis, that I would need to start chemotherapy.

After having a test called FISH (florescence in situ hybridization), which is used to look at genes or chromosomes in cells and tissues. I asked about my results, and was told I had a 92% deletion of the 17p chromosome. That put me in the high risk category for a very aggressive cancer. Upon questioning my Oncologist further, it was finally told to me that chemotherapy usually has no effect. Eventually I was told in June of 2012 that the only course of action left for me, was a stem cell transplant, or a clinical trial. Currently there are other treatments now, and good ones, Ibrutinib being just one.

Being to old for a successful stem cell transplant, a clinical trial was the only thing left. After being told sorry, the trial I was signed up for, had been filled, I felt a very deep feeling of loss.

Well the rest of the story I have written about in previous blogs, so I will not repeat myself. But after almost two and half years from that feeling of loss, I quote those verses above. For my Father in heaven, gave me the trust in Him, I needed. He is the One who loves me, and everyone else, more that we can imagine. How do I know this, because He sent his only begotten, only beloved son, to take our place. He, Jesus the Christ received condemnation, we received forgiveness. He, Jesus the Christ, received death, we received life.

Now it is true, that many will not, and do not accept or believe this. But for those who do believe, then His condemnation gives them forgiveness, and His death, gives them life, and that life is to be with Him forever.

I have heard it said,  “It is a cancer that doesn’t kill you.” I know this is said with well meaning in mind. But this cancer has no mercy, and does kill everyday. I know, I have spoken with many in these past years, who have died because of it.

It has also been said, “positive thinking has really made a change for you. ”I have no positive thinking or positive thought concerning my cancer.  I say, “have mercy upon me, O LORD; for I am weak: O LORD, heal me; for my bones are vexed.” and He does daily. I say “Heal me, O LORD, and I shall be healed; save me, and I shall be saved; for thou art my praise.” and He does.

The centurion tells Jesus that his servant is at home sick. Jesus says, I will come and heal him.

Thank you Lord, my prayer is that all would know the immeasurable and eternal love you have for them.

Good day to all. I must say that I am joyful and alive, wishing to share some thoughts with those who may be interested.

My focus today is on bone marrow, and a verse in the Bible that mentions it.

The bone marrow is an important part of the body for health and life. When it functions correctly, your body functions just like it was created to function. Healthy, strong, and alive. Bone marrow produces blood cells (erythrocytes) that carry oxygen to tissue. It produces platelets or thrombocytes which prevent bleeding and aid in clotting of blood. It produces granulocytes (neutrophils, basophils and eosinophils) which fight infections from bacteria, fungi, and other parasites, as well as other functions.

It makes B-lymphocytes which produce antibodies, and T-lymphocytes which directly kill or isolate invading cells.

Stem cells, another very important product is also in the bone marrow. These cells have the capacity to form various cells of the body including osteoblasts (bone forming), chndrocytes (cartilage), myocytes (forming of muscles), as well as other cells. Then there are the endothelial stem cells that form blood vessels.

But when the bone marrow is adversely affected, it will produce illnesses, often with physical death soon behind.

What are some of the things that destroy or damage bone marrow?

Toxic chemicals, certain medicines, chemotherapy, and possibly poor eating habits. Along with these, we can include viruses, genetic conditions, and I am sure there are more.

Hebrews 4:12 For the word of God is living, and powerful, and sharper than any two-edged sword, piercing even to the dividing asunder of soul and spirit, and of the joints and marrow, and is a discerner of the thoughts and intents of the heart.

When reading Hebrews 4:12, we are told that God’s word even penetrates the bone marrow. What Hebrews 4:12 is saying, is that not only will the Word of God penetrate soul and spirit, but also the bone and marrow. He will also touch your joints and marrow, and even change the health of your body if need be. And when He does, you will know. Wether it be a feeling of better health, joints and bones no longer aching, and no more being short of breath, with even your blood tests showing all is normal.

Now it came to pass that Jesus was going to the city of Nain, and there was a great multitude with him. As he came near the city, lo one dead was being carried forth , and only son of his mother, and she a widow, and a great multitude followed her. And the Lord having seen her, was moved with compassion toward her, and said to her, “be not weeping.” Coming near, he touched the bier, and said, “Young man, to thee I say, Arise,” and the dead sat up, and began to speak, and he gave him to his mother.  Luke 7.

What is the picture here? There are two groups of people on a certain path, each group coming towards each other. One carrying the body of her only son, to bury him and say goodbye. The other, Gods only Son to say hello. So life came forward (for in Him is life), and death meets life on that road. One only son is dead, and the other one only son is the life and the resurrection. Jesus stops her, has compassion on her, touches the stretcher, and tells the young man to arise, and he does.

God’s word is living, and when it touches death, death always gives way to life.

Good day to all of you. I want to thank you for coming to my blog. I hope I will have written something of value today.

I spent yesterday morning with my Oncologists. My doctor is still trying to figure out why I have been getting better results, than what I should be getting, without having chemotherapy. I had mentioned six months earlier that I was eating bitter apricot seeds.

So we looked at my lymph node biopsy that was done in March 2011 and yes, the lymph node was positive for SLL/CLL. So we concluded that I did and still do have SLL/CLL, but why the consistently improving blood counts.

12/26/10 15.6 12.8 87
01/10/11 15.8 13.3 112 4.3
01/19/11 11.7 13.1 78 4.2
02/17/11 12.5 13.7 87 4.5
05/12/11 11.6 11.9 77 5.5
08/08/11 13.3 12.4 85 7.63
09/08/11 18.5 63
10/20/11 15.7 12.1 60 8.6
12/21/11 13.4 11.9 64
01/06/12 12.5 11.7 63
01/26/12 11.1 11.1 62
04/26/12 11 11.4 54
05/25/12 11.7 11.1 53 8.1 Started Seeds beginning of June 2012
06/22/12 12.4 11.4 59 8.7
08/19/12 9.7 10.7 63 5.9
12/03/12 9.1 11.1 73 5.1
03/04/13 6.1 10.3 63 2.94
06/03/13 6.6 11 72 2.6
08/08/13 6.4 11.1 101 1.89
09/05/13 5.8 11.9 88 1.59
Normal WBC Normal HGB Normal PLT Normal ALC
4.0-10.6 12.8-17.0 150 1.0-3.7

That meeting yesterday, led me to think about a question I have been asked frequently. “Are they safe to eat?” It got me thinking, “was is it something I wrote or said, or more importantly not said,” that so often prompted this question.

So I thought, what actually made me decide to eat bitter apricot seeds. Did I believe that the apricot seeds would heal me? I had already answered that in one of my previous blogs. No, I did not believe they would heal me. I hoped they would help with my low platelet count only.

I wonder why this question is asked so often. Is this question asked because our eyes are on the bitter apricot seeds, or on the God of the Bible. Is seeing the good results I am having, do to the apricot seeds, or to the One who created them.

I know that my faith is not in the bitter apricot seeds for my improving health, but in the God of the Bible who said to eat the seeds that are in the fruit. I hope this is the reason you are eating them.

It certainly is true, by empirical evidence (my actual blood test results), the bitter apricot seeds are working (even though I can’t get anyone in the industry to admit it). This is the only change I have made since being told I have Small Lymphocyte Lymphoma/ Chronic Lymphocyte Leukemia. These results are in black and white, and cannot be denied, they are a fact.

But we must realize that they work only because of who created them. And that someone is the God of the Bible. I do not want to understate this truth. Bitter apricot seeds only work, because the God of the Bible made them to work.

So to this question: Are they safe to eat? God says to eat the seeds in fruit.

This question has made me think of what Jesus Christ said in Luke 16:31. Neither will they be persuaded though one rose from the dead.

Now I am not raised from the dead, but I hope some of you will understand why I use this verse.

Over the last twelve months, I have had the good fortune of being able to write, in my blog, the gains I have been having, battling my cancer.

I received my blood readings today, while at the doctors office for my annual check-up. The last entry, dated 08/8/13 is what they currently are. My doctor made an appointment for me to have a sonogram, so they can know exactly how much my spleen has gotten smaller. She believes it is back to normal, as she could not touch it anymore.

12/26/10 15.6 12.8 87
01/10/11 15.8 13.3 112 4.3
01/19/11 11.7 13.1 78 4.2
02/17/11 12.5 13.7 87 4.5
05/12/11 11.6 11.9 77 5.5
08/08/11 13.3 12.4 85 7.63
09/08/11 18.5 63
10/20/11 15.7 12.1 60 8.6
12/21/11 13.4 11.9 64
01/06/12 12.5 11.7 63
01/26/12 11.1 11.1 62
04/26/12 11 11.4 54
05/25/12 11.7 11.1 53 8.1 Started Seeds beginning of June 2012
06/22/12 12.4 11.4 59 8.7
08/19/12 9.7 10.7 63 5.9
12/03/12 9.1 11.1 73 5.1
03/04/13 6.1 10.3 63 2.94
06/03/13 6.6 11 72 2.6
08/08/13 6.4 11.1 101 1.89
Normal WBC Normal HGB Normal PLT Normal ALC
4.0-10.6 12.8-17.0 150 1.0-3.7

For the first year and one half, I had seen my blood counts moving in the wrong direction, showing my doctor and me, that the cancer was becoming more aggressive. It was at the point where I was told that the best course of action was either a stem cell transplant, or a clinical trial. It was agreed that with my chromosome 17p deletion, chemotherapy may not be very effective.

Since that gray day in May 2012,  knowing I was stage 4, I have seen my cancer go from getting ever more aggressive to remission.  All of this happening without chemotherapy, stem cell transplant, or clinical trial.

I do continue to eat 15 to 18 bitter apricot seeds everyday. I have an apple twice a week, and also the seeds in it. I call it God’s chemotherapy.

As I look back on that day in 2010, when I was first told I have cancer, I have come to realize that it is not just cancer, but a terminal disease. It was March 2011 when the doctor told me I had Small Lympocytic Lymphoma/Chronic Lympocytic Leukemia (SLL/CLL) and that there was no cure. I guess that was a nice way of saying your cancer is terminal.

(Bing dictionary: causing death: inevitably, but often gradually leading to death of the patient affected.)

While focusing on what has happened to me, I remembered back to the time when I first realized that everyone, including myself had a terminal condition.

However this terminal condition was and is, far worse than the physical one I have now. This one is eternal, forever, with no end.

God wrote in stone what His commandments (the law) were. And to fix them in stone, must mean they are quite important.

   1.  I am the Lord thy God, thou shalt have no other gods besides Me.

   2.  Thou shalt not make for thyself  any graven image.

   3.  Thou shalt not take the name of the Lord thy God in vain.

   4. Remember the Sabbath, to keep it holy.

   5. Honor thy Father and Mother.

   6. Thou shalt not murder.

   7. Thou shalt not commit adultery.

   8. Thou shalt not steal.

   9. Thou shalt not bear false witness against thy neighbor.

 10. Thou shalt not covet.

So I thought back to the time when I asked myself, okay what commandments have I broken?  To many, was my answer. Then I realized that if it was only one, I would still be guilty under the law. So without listing all of them in order again, I knew I was an idolater, adulterer, thief, liar, and so on.

As I began to read more of what God had to say, I came across these verses. Romans 2:15 clearly shows that the works of the law are clearly written in our hearts, as our conscience bears witness to it.

Now Romans 3:19 says: “Now we know that whatsoever the law saith, it saith to them who are under the law: that every mouth may be stopped, and all the world may become guilty before God.”

And “Therefore by the deeds of the law there shall be no flesh justified in His sight: for by the law is the knowledge of sin.” Romans 3:20

So I thought, when God judges me, am I innocent of sin, or guilty of sin? I had to conclude, if I was to be honest with myself, I am guilty of sin.  I read that the wages of sin is death. Of course back then I was very healthy and realizing that sin led to death, I found nothing appealing about it. I also did not find the second death very appealing either. I did not want to go to hell, period.

Realizing how serious God was about sin, and how severe sin really is, I asked Jesus Christ to save me. I truly felt sorry for everything wrong I had done, even though I knew I could not make most of them right. I still believed Jesus would and could save me from the holy judgment of God. Now more than thirty years later, I am confident He did.

Now in this present time of my life, physical death does not seem as bad to me, as it once did. But that second death, well I am still not crazy about it, and you shouldn’t be either.

And death and hell were cast into the lake of fire. This is the second death.” Revelations 20:14.

But the fearful, and unbelieving, and the abominable, and murders and whore mongers, and sorcerers, and idolaters, and all liars shall have their part in the lake which burneth with fire and brimstone; which is the second death.” Romans 21:8.

Well if the above is true, then God must punish law breakers. But I am told, He is to good to let people go to hell. Well, if someone steals from me, goes to court, is found guilty, under the law, and then the good judge lets that person go. I would not conclude that the judge is good. It is just the opposite, those under the law are found guilty because the judge is good.

So if God is truly good, then He must be just. That’s just great, because He is good, and I have broken  His laws, I must pay. So the wages of sin is truly death!  So how do I get out from being under the law?

Since that time way back in 1978 I have heard many people, over the years, say many things concerning God, I have been told about His goodness, His meanness, His anger, His Holiness, and every other description that man could think of.

Then I read what Jesus Christ says, “take my yoke and put it upon yourself, and learn of me, for I am meek and lowly in heart, and you will find rest unto your souls.”

But wait I then read that God commended His love toward me, in that while I was still a sinner, Christ died for me. Romans 5:8.

And again I read that Christ died for my sins according to God’s word.  1Corinthians 15:3

Then I am told that Christ redeemed me from the curse of the law. Galatians 3:13.

So what am I to make of all of this? Because God is good, He will fulfill His justice, according to the law. And  then I find He has fulfilled the demands of the law.

By His goodness, He sent His only begotten son, Jesus Christ, to stand in my, our place, and receive His judgment.

For the wages of sin is truly death, but the gift of God is eternal life. How? Through Jesus Christ.

For the son of man came not to be ministered unto, but to minister and to give his life a ransom for many.

So if your heart condemns you because of the commandments of God (law), know that God is greater than our hearts, and knoweth all things. Also know that the Son of God is come, and has given us an understanding that we may know Him that is true, and we are in Him that is true, even in his son Jesus Christ. This is the true God and eternal life.

I was told by someone, this all sounds great, but you must really believe it, not just say you do. That person was absolutely correct, and without realizing it, knows what the Gospel really is.

If you will confess with your mouth the Lord Jesus Christ, and believe in your heart that God raised him from the dead, you will be saved.” “For with the heart, man believes unto righteousness, and with the mouth confession is made unto salvation. “Romans 10:9&10.

We hear a watered down gospel these days, God is love, God forgives, God cares about you, and all of that is true. But we have neglected to say that God is also Just, and Holy. There is no darkness in Him at all. He renders judgment on those who are under the law, and have not followed the law.

After revealing the whole truth, as written in His word, then and only then can we declare what else He has done.

For Christ is the end of the law, for righteousness to everyone who believeth. -AND- Knowing that man is not justified by the works of the law, but by the faith of Jesus Christ, even we have believed in Jesus Christ and that we might be justified by the faith of Christ, and not by the works of the law: for by the works of the law shall no flesh be justified.

I would like to thank all of you who read my blog. May God show you His truth in all matters.

It was a real busy Friday, but a nice one. I spent the whole day with my wife, shopping for groceries, going to craft stores, and then out to dinner with some friends we had not seen for over five years. Like usual, the weather was near perfect, however it was a bit cooler than usual, only high of 76 degrees. My wife wore her jacket, and I wished I had too, but didn’t, thinking it would get warmer during mid-day.

The diagnosis of CLL is typically made by the immunophenotype, which is a flow cytometry test (Flow Cytometry is a test that can be used to measure the amount of DNA in cells). This test is now widely used in the characterization of many different human cancers, with the information used by physicians to determine how well a cancer may respond to a particular therapy. And CLL has typical markers that are shown here, that are expressed on the cell. And it’s important, if you’re out there and you’ve had CLL for a long time, to be sure this test has been done. Because sometimes this test wasn’t done in the past and there are a lot of things that can look like CLL that aren’t CLL, such as mantle cell lymphoma and other types of lymphomas. So I would encourage if you haven’t had these done, this is something that should be done for all CLL patients.

I would like to mention that there is a big distinction to be made to what is CLL versus these other diagnoses, such as Small lymphocytic lymphoma or monoclonal B-cell lymphocytosis. Small lymphocytic lymphoma is essentially having blood markers, the immunophenotype, consistent with B-cell CLL, but not having a lot of disease in the blood. And typically these patients that have small lymphocytic lymphoma will have a low blood count, the flow cytometry findings of CLL, and lymph nodes that are palpable. And often they’re referred to a lymphoma doctor. But it’s important to realize that this is really the same disease as CLL, it has the same biology, the same natural history and the same treatment of CLL. And really this is just where the disease is at. I would suggest that if you can, find a Hematology/Oncology physician. Thankfully my doctor is one, and I must say, he knows his stuff.

CLL patients at diagnosis, usually the majority being asymptomatic. They’re not having symptoms and the disease is picked up from blood tests or a work-up for something else, a kidney stone (It was a kidney stone that caused my SLL/CLL to be picked up), or an infection, where the white blood cell count is noted to be elevated.

When a patient, after they’ve had the diagnosis established, hear the word leukemia, along with their family members, become very scared, and why not, it is a very scary disease. Many have known or know somebody that had leukemia and passed away very quickly, and in turn, expect the same. Fortunately, CLL patients do better than those with other types of leukemia, but unfortunately, because of this fact , sometimes a bad term is said, and probably some of you have heard it, well, this is a good leukemia. And that’s why I say, there’s no good leukemia. If somebody tells you that’s a good leukemia, I would encourage you to correct them. There is no such thing as a good cancer.

I have learned much about my disease from the information offered by the Leukemia and Lymphoma Society. The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS is the world’s largest voluntary health agency dedicated to blood cancer. LLS funds lifesaving blood cancer research around the world and provides free information and support services.

Their key priorities will ensure that: The Leukemia & Lymphoma Society helps blood cancer patients live better, longer lives.

  • Advance the diagnosis and treatment of blood cancers through continued funding of academic research, the therapy acceleration program and other special initiatives
  • Proactively establish a research agenda and direct a portion of research spending to specific areas of unmet medical need for leukemia, lymphoma & myeloma
  • Participate directly in blood cancer therapy development by expanding research beyond academic collaborations and biotech partnerships to include pharmaceutical companies and/or venture capitalists.

I am not advertising for the LLS, just stating the fact that those who work, and or volunteer for them, really care about we, who fight this fight daily.